Other ways to get involved with research
Whether you are a patient, carer or simply a member of the east London community, we want you to be involved in our research so that we can make sure we are meeting the needs of our local community.
There are many ways you can help us with our research, from telling us if you don’t understand a question (you’d be surprised how helpful this is!) to making sure people are approached in the right way. You might be asked to help us make sure the research is reported in the right way or to join an advisory group. Whatever your role in helping with our research, you will be at the frontier of modern medicine helping us improve health both locally and across the world.
Current opportunities to get involved
Patient Research Champions
Do you have an interest in research and some free time to volunteer?
We have recently launched our Patient Research Champion role at Barts Health, where we are looking for patients/members of the public/service users/carers who are enthusiastic about health research and are willing to communicate that to other patients and public as well as healthcare professionals.
There is a range of ways that you can help across our five hospitals. Find out how to apply to be a Patient Research Champion.
The Retinoblastoma Service team at Royal London Hospital is designing a study looking at the quality of life of children newly diagnosed with retinoblastoma, and how it is affected by treatment course, time point, and parental coping/distress. The team would like the input of anyone who has had retinoblastoma, is related to someone who has/had retinoblastoma, and/or members of the public on the design of the study. This is to make sure the study is relevant to families of retinoblastoma patients and the patients themselves. Complete the retinoblastoma survey
Patient advisor needed for help with grant application
The NIHR CLAHRC North Thames are recruiting a patient adviser to be help shape up a grant application for a virtual computer modelling system that can predict the likelihood of success or failure of an Endovascular Aneurysm Repair (EVAR) graft, tailored to the individual patient. If this grant application is successful, then the patient adviser may become part of the research team.
They are specifically looking for someone with experience of abdominal aortic aneurysm (AAA) who has then undergone Endovascular Aneurysm Repair (EVAR).
Our accident and emergency research team need you
Our A&E research team are looking for members of the public to join their Patient and Public Group. They meet quarterly to discuss current research and identify ways in which research can be effectively delivered in a busy A&E department. The team also ask members to look at proposed research and feedback any practical concerns or ideas they have. Find out how you can get involved with our A&E research team.
Pregnancy and childbirth research
The Katherine Twining Network researches topics around pregnancy and childbirth such as pre-term birth, pre-eclampsia, epilepsy in pregnancy, infertility, chronic pelvic pain, treatment options during caesarean section and nutrition in pregnancy. KT’s network always needs pregnant women and new mothers, as well as community advisers and other members of the community. For more information contact: email@example.com
Payment for public involvement for those in receipt of welfare benefits
The INVOLVE information sheet for the public offers information about what to consider when offered paid involvement. This includes where to seek expert advice about how payment may affect your welfare benefits. It explains the context in which payment is offered and how public involvement in research is different from paid employment (especially important if you are receiving incapacity benefits) and also refers to sections of the Department of Work and Pensions staff guidance that addresses the regulations covering payment for ‘service user involvement’.
Featured research studies
Brains: Bio Repository of DNA in Stroke
Study aim: To establish a DNA repository of all haemorrhagic and ischaemic stroke patients of adult age over 18 years old, which occurred at any time.
Background: Stroke is a major health problem in this country and yet we know little about the genes (inherited factors) that influence it. We are trying to identify which genes may be responsible for stroke. We would be very grateful if you could kindly provide us with a small blood sample which can be taken from your arm, the method of which is the same as any other simple blood test you have had previously.
At Newham we are recruiting stroke patients and controls with South Asian background: Indian, Pakistani, Bangladeshi and any other Asian background (African Asian, Kashmiri Other, Nepali, Sri Lankan Sinhalese, Sri Lankan Tamil, Sri Lankan, Other Asian).
Recruitment is ongoing. At the two Barts Health participating sites, (Newham and The Royal London), we have recruited 472 patients to BRAINS since 2012/13.
Contact for queries/ further information on eligibility criteria: firstname.lastname@example.org or telephone: 020 7055 5836
A trial of group antenatal care: Pregnancy Circles
A team of researchers, together with midwives from Barts Health, are looking to improve antenatal care by moving from individual care provided by a midwife to group care where pregnant women form ‘Pregnancy Circles’. Women in Pregnancy Circles meet together throughout their pregnancies in a series of sessions facilitated by the same two midwives. Sessions involve information sharing, self-care activities (women are taught to check their own blood pressure and urine), and brief one-to-one sessions with one of the midwives for individual health checks. The aim is to improve women’s experience and outcomes of antenatal care.
To understand if and how Pregnancy Circles may be better than usual individual care, a large and rigorous research study (an RCT) is planned. Around 1,500 pregnant women will asked to take part in either Pregnancy Circles or to continue with their usual care to compare experiences and health in themselves and their babies. The study has already been piloted at Barts Health NHS Trust and the full trial is planned to start across different NHS settings in early 2018.
If you are pregnant, you may be approached about the research study and we hope you will consider being involved. Find out more about Pregnancy Circles RCT and the wider REACH pregnancy programme.
You can also contact the REACH team by email at email@example.com or call 020 8223 4797/4583