Other ways to get involved with research

Whether you are a patient, carer or simply a member of the east London community, we want you to be involved in our research so that we can make sure we are meeting the needs of our local community.

There are many ways you can help us with our research, from telling us if you don’t understand a question (you’d be surprised how helpful this is!) to making sure people are approached in the right way. You might be asked to help us make sure the research is reported in the right way or to join an advisory group. Whatever your role in helping with our research, you will be at the frontier of modern medicine helping us improve health both locally and across the world.

For more information on how to get involved, please see our Introduction to Public Involvement in Healthcare Research

Current opportunities to get involved

1) Patient Research Champions

Do you have an interest in research and some free time to volunteer?

We have recently launched our Patient Research Champion role at Barts Health, where we are looking for patients/members of the public/service users/carers who are enthusiastic about health research and are willing to communicate that to other patients and public as well as healthcare professionals.

There is a range of ways that you can help across our five hospitals. Find out how to apply to be a Patient Research Champion.

2) Patient advisors needed!

The NIHR CLAHRC North Thames has two exciting roles available which offer the opportunity to work with world-class researchers in some of the UK’s most prestigious education institutions.

A new research study started in January 2019 and will run for three years. The aim of the study is to improve the quality of emergency care for patients with bowel cancer in order to save lives and improve outcomes. This will be done by identifying the processes of care that have the greatest impact on outcomes.

The NIHR CLAHRC NT are seeking the input and views of members of the public to guide them on how we carry out research and how they can disseminate the findings of the research to patients and the wider public. They would particularly welcome the involvement of people with bowel cancer or people who have undergone emergency major bowel surgery. Read more about this opportunity or email INVOLVE or phone 023 80651088 and quote NIHR CLAHRC North Thames.

3) A&E/Trauma patient groups

Our Accident and Emergency department have two patient groups that are always looking for new members to join.

1) Our A&E research team are looking for members of the public to join their Patient and Public Group. They meet quarterly to discuss current research and identify ways in which research can be effectively delivered in a busy A&E department. The team also ask members to look at proposed research and feedback any practical concerns or ideas they have. Find out how you can get involved with our A&E research team

2) Our Trauma team The Centre for Trauma Sciences (C4TS) is always looking for former trauma patients, carers and members of the public who are able to contribute to their research into the best ways to treat traumatic injury. Find out more about The Centre for Trauma Sciences

4) Pregnancy and childbirth research

The Katherine Twining Network researches topics around pregnancy and childbirth such as pre-term birth, pre-eclampsia, epilepsy in pregnancy, infertility, chronic pelvic pain, treatment options during caesarean section and nutrition in pregnancy. KT’s network always needs pregnant women and new mothers, as well as community advisers and other members of the community. For more information contact: ktnetwork@qmul.ac.uk

If you'd like to find other opportunities to get involved in health and social care research, please visit the People in Research website.

Patient and Public Involvement news

New interactive course for public contributors/reviewers

INVOLVE has launched an interactive course for new and experienced reviewers of health and social care research.

This free course covers reviewing in all contexts for NIHR research funding programmes, plus skills and activities required at different levels and stages of research. It is designed for:

  • Public contributors who have been asked to provide feedback on a research document or sit on committee that assess several research documents.
  • Public contributors who are new to reviewing and those who want to know more.

Read the Public Reviewing course modules

 

If you'd like to find other opportunities to get involved in health and social care research, please visit the People in Research website.

Payment for public involvement for those in receipt of welfare benefits

The INVOLVE information sheet for the public offers information about what to consider when offered paid involvement. This includes where to seek expert advice about how payment may affect your welfare benefits. It explains the context in which payment is offered and how public involvement in research is different from paid employment (especially important if you are receiving incapacity benefits) and also refers to sections of the Department of Work and Pensions staff guidance that addresses the regulations covering payment for ‘service user involvement’.

Patient Research Experience Survey

In 2018, Barts Health took part in the NIHR Patient Research Experience Survey (PRES) for the first time, to gather feedback from patients who take part in our studies and to learn what works best for them, so we can make helpful changes in the way we do research in the future.

The research engagement and diffusion team coordinated the delivery of the PRES, which involved research staff conducting studies across a number of medical specialties, including; cardiovascular research at St. Bartholomew's Hospital, The Clinical Research Centre at The Royal London Hospital, The Clinical Research Unit at Whipps Cross, and stroke, diabetes and children’s health research accross our sites. 

Neeta Patel, associate director explained: “When we were first approached by the Clinical Research Network: North Thames about delivering PRES to our research patients, we didn’t hesitate to say yes.  Patient feedback helps us to better understand what is important to patients taking part in our studies and in turn, helps us to make improvements, where they are likely to have the greatest impact.  We want patients taking part in research at Barts Health to have the very best experience possible and the PRES can help us to achieve this.” 

You can read the Barts Health PRES 2018-2019 results and below are some of the things we have learnt so far: 

Patients are interested to learn the results of studies they’ve taken part in. 

In response to feedback received from patients taking part in diabetes research at The Royal London Hospital, the team are making changes to the ways they disseminate research outcomes to trial participants.  They want to ensure that every person who has participated in a study is given the results of the research study that they took part in.  The team will also display study results on the Barts Health website, on posters around the hospitals and in GP practices and through social media, where appropriate.

Many patients did not know that research was taking place in their local Barts Health hospital before they were first offered the opportunity to take part in a study.      

The Barts Health Clinical Research Facility staff at Whipps Cross and The Royal London Hospital are working to raise the general visibility of research by displaying banners, posters and flyers about different studies in hospital clinics and corridors. 

Staff conducting stroke research across the trust will be working to improve the way they share information about research with their colleagues so that all members of a patient’s direct care team will have the confidence to engage with their patients about taking part in a study.

'I believe my participation in this study will benefit future patients with similar health problems' Renal trial participant 

Nurse with Be Part of Research foam hand