Haemophilia

Welcome to The Royal London Hospital Haemophilia Centre. We provide high quality care for adults and children with all types of inherited bleeding disorders.

The Haemophilia Team at The Royal London is a multi-disciplinary team of healthcare professionals who are dedicated to delivering high quality care for people with inherited bleeding disorders. The team is made up of specialist consultants, clinical nurse specialists, a physiotherapist, laboratory specialists and an administrative team.

Inherited bleeding disorders are rare genetic disorders that result in a tendency to bleed. People with mild bleeding disorders have few symptoms on a day to day basis, but may bleed excessively for example during surgery, whilst those with severe bleeding disorders may have spontaneous bleeds.

Severe bleeding disorders tend to be diagnosed in childhood or as part of screening in families known to have bleeding disorders. Bleeding disorders can be the result of a deficiency in one of the clotting proteins or secondary to disorders in platelets which are also an important component to producing a blood clot.

We provide haemophilia services at:

  • The Royal London Hospital

Why choose us

The Royal London Haemophilia Centre is one of the largest haemophilia centres in England. The haemophilia centre is accredited as a “comprehensive care centre” by the United Kingdom Haemophilia Centre Doctors Organisation (UKHCDO) and has been so for over twenty years.

We have recently had a peer reviewed triennial audit from the UKHCDO which was complimentary and the centre was deemed to ‘offer an excellent standard of care to their patients and this is borne out by the excellent patient feedback about the unit’. In a recent patient survey over 90 percent of patients asked, reported our care as excellent or good. 

Research is undertaken in the study of new approaches to treatment for example, the centre was a major recruiter to recent studies of long acting factor VIII and IX products. Other areas of clinical research include Von Willebrand disease, inhibitor development and prediction of inhibitor risk.

For patients

The Haemophilia Centre is based on the second floor of the central tower at The Royal London Hospital. 

Outpatient clinics

If you are refereed to us by your GP or by another hospital team then we will see you in one of our outpatients clinics either in the adult or children’s clinic. On your first appointment we may need to take some blood tests. Our laboratory provides a wide range of diagnostic tests. You will then be offered a follow-up appointment with us to discuss the results in clinic.

Registering patients

If you are diagnosed with an inherited bleeding disorder, we will register you at our centre and send you a “bleeding disorder card” with your diagnosis and relevant blood results on it. Registered patients have 24 hours a day 7 days a week access to telephone advice for any issues related to their diagnosis. (Please see contact details).

The Haemophilia Centre

We also see patients with inherited bleeding disorder in our dedicated facilities in The Haemophilia Centre. This may be to assess a bleed, administer treatment or to review progress after surgery. You may be assessed by one of our nursing, physiotherapy or medical team depending on the situation. We provide training and education to newly diagnosed patients and where appropriate teach patients administration of factor concentrates. For those requiring it, we can arrange home treatment therapy and home delivery of factor concentrates as well as community visits by hospital based nurse specialists. 

Combined outpatient clinics

We run combined clinics in women’s services and musculoskeletal/rheumatology, plus work closely with colleagues in hepatology and HIV. Our academic Dental Team are experienced in treating dental patients who have inherited bleeding disorders.

Inpatients

People with inherited bleeding disorders that require emergency and elective surgical procedures, will be admitted under the surgical team, but will be seen on a daily basis by the Haemophilia Team to oversee any treatment they may require for their bleeding disorder.

Emergency care

We provide 24 hour a day 7 days a week advice for patients with inherited bleeding disorders. Out of hours we review patients in the adult or children’s Emergency Departments. Our laboratory provides 24 hour a day 7 days a week specialist laboratory tests when required.

Laboratory diagnostics

Our specialist haemostasis laboratory provides a wide range of tests to diagnose and monitor inherited bleeding disorders. Some of theses tests are available 24 hours a day seven days a week. 

Research

We carry out many studies looking a long acting factor VIII and IX treatments and we are always looking at potential trials for novel therapies that some our patients may be interested in taking part in. 

Contact us

During working hours, 9am – 5pm

For adults    

Haematology Day Unit and Haemophilia Centre,  
2nd Floor, Central Tower, The Royal London Hospital, 
London, E1 1BB

Tel: 020 3594 1869   

For children    

Paediatric Day Unit, Ward 6B, 
The Royal London Hospital, London E1 1BB

Tel: 020 3594 1441

Outside of working hourse contact the the main switchboard on 020 7377 7000

Email: haemophilia.centre@bartshealth.nhs.uk

For clinicians

Referrals can be made direct to the centre or through the choose and book system.

Contact us

Haematology Day Unit and Haemophilia Centre,  
2nd Floor, Central Tower, 
The Royal London Hospital, 
London, E1 1BB

Tel: 020 3594 1869
Fax: 020 3594 1859
Email: haemophiliacentre@bartshealth.nhs.uk 

Out of hours

Please call switchboard on 020 7377 7000 and ask for the haematolgy registrar on call.