All examinations under anaesthetic and treatments take place on Daycare Ward, 6th Floor of The Royal London.
If your child is having treatment that requires them to stay in hospital over night they will stay on an inpatient ward.
If you have an outpatient appointment this will take place in the Eye Clinic at the Royal London Hospital. The Eye Clinic is located on the 6th Floor in Clinic 2.
The Royal London Hospital
London, E1 1BB
Tel: 020 359 41419
The retinoblastoma service has an agreement with a local hotel for family accommodation on the night before admission. If you require accommodation speak to a member of the retinoblastoma team so they can arrange this for you.
If you have any concerns or questions during your child’s stay, the medical staff are happy to help. Even if we are busy, we will always try to make time to listen and give you the information you need.
The Trust offers many advice and support services for patients and visitors. aAsk a member of the team to find information on these services and how to access them, and also ways you can get involved to help make improvements.
There are several support groups for patients and parents of patients with retinoblastoma:
We have close links with The Childhood Eye Cancer Trust (CHECT) who have staff based at our hospital. They provide a support network and information for families who would like to know more about this rare condition.
There are also two north American based online forums for patients and families with retinoblastoma. Registration is required to access these pages. These can be found on the Association of Cancer online resourses website.